American families with ATR-X loved ones are having our annual meetup in Hartford, CT, on July 19-21. The loosely organized weekend will include lots of time together to talk and bond over our shared experiences, a talk on Cortical Visual Impairment (CVI), a music therapy session, an update on the International ATR-X Foundation, some Pepe’s pizza (hopefully!) and a trip to the Mystic Aquarium.
Reach out to me if you need details. AllAboutATRX@gmail.com
Hope to see everyone there!
If you have a family member who has been diagnosed with ATR-X, I highly suggest joining the closed Facebook group, ATR-X. You must be approved and will be added once the admins confirm you have a connection with ATR-X.
If you live in the US, there is also an ATR-X American Families Facebook group that facilitates a yearly meetup and other geo-specific conversations. I suggest joining both, but most conversations around the syndrome take place in the main ATR-X group.
You can also email me at allaboutatrx@gmail.com
All About atr-x 